All our latest news, campaign updates and blog posts from the METUPUK team and the wider MBC community.
I’ve been asked this question a lot. I’m very open about my diagnosis and don’t mind people asking me questions, but I never know how to answer this one. What do you call the disease chipping away at…
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The coronavirus outbreak has had a serious impact on the treatment of other seriously ill people. Cancer care has been badly affected, with some screening, treatments and trials postponed or delayed.…
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Our April email. 17.4.20 Dear Jo, Jo, Leslie, Beth and all at METUP UK, I hope you and your families are okay at this difficult time. Thank you for being in touch and raising a number of issues. I…
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Dear Delyth, In the absence of any consistent reassurance from NHS or Third Sector sources, the members of METUPUK feel compelled to write to you to ask what specific steps are being taken to support…
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When I came onto Twitter in the months after my treatment ended, it wasn’t to become an advocate. Honestly, I’m still not sure I’m anything more than an accidental one. There was no grand plan back…
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This morning member Bex Lewis spoke to John Pantry from Premier Christian Radio from Vaughan Park in New Zealand, where she had won a two-month writing scholarship (and break from ongoing treatment…
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METUPUK member Kit D was featured on Breast Cancer Now, as a patient story, living at a young age with ‘de novo’ metastatic cancer, including this section: In reality, I am… A feminist (a fairly…
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Key Messages This was my first time at this conference which is held in Lisbon every 2 years and focuses entirely on Advanced Breast Cancer. Jo had been to the previous ABC4 in 2018. We attended this…
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Terminal breast cancer patients descended on parliament last week. Armed with over 70,000 signatures, they demanded change for the tens of thousands in the UK living with the killer disease. Members…
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Soon after my diagnosis with secondary breast cancer aged 33 someone tried to explain to me that my diagnosis could be viewed as a good thing. I don’t know why they thought that as I promptly blocked…
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Anger sometimes comes in waves, but I try to take my mind off things with work, outdoor activities and of course day to day life with my husband and two children helps immensely. Switching off from…
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“Patient advocacy is an area of specialization in health care concerned with advocacy for patients, survivors, and caregivers. The patient advocate may be an individual or an organization, often,…
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