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News & blog (228 articles)

Speaking Up to Be Heard: My Journey With Metastatic Breast Cancer and the Power of Self-Advocacy — 19 May 2025
How do we get better outcomes and survival for Metastatic Breast Cancer? — 2 February 2025
Trustees’ Week by Madeleine Meynell — 6 November 2024
Why I volunteer with METUPUK… — 30 October 2024
I’m a 51 year old NHS nurse and 18 months ago I was told i had MBC… — 29 October 2024
I remember the 22nd April 2021 very clearly… — 28 October 2024
Life has a way of throwing curveballs when you least expect it… — 28 October 2024
Wales update — 27 October 2024
Easter 2017, I went for a mammogram… — 25 October 2024
Breast Cancer is the most diagnosed of ALL cancers worldwide… — 25 October 2024
DATA – Delivering Advancements Through Action — 23 October 2024
Data Collection for metastatic breast cancer… — 22 October 2024
The Patience and Patients of Clinical Trials… — 21 October 2024
After living with Metastatic Breast Cancer for over 3 years… — 20 October 2024
“It shouldn’t be this hard”. That was a comment on my Twitter thread… — 18 October 2024
Having just completed screening for a clinical trial I must initiate this discussion… — 17 October 2024
Accessing clinical trials is a minefield… — 16 October 2024
In our recent Metastatic May campaign, the theme was ‘The Cost of Living’ — 15 October 2024
According to Cancer Research UK, approximately one in five of all new female breast cancer cases are under the age 50… — 14 October 2024
Treatement lines and herceptin for HER2+ metastatic breast cancer — 13 October 2024
13th October – metastatic (secondary) breast cancer day – redefining MBC… — 12 October 2024
Do you remember what you were wearing on 1 December 2019? Probably not. I do… — 12 October 2024
Asha died in March 2024. She wrote this blog, explaining the problems that she experienced trying to access a drug… — 10 October 2024
I contacted METUPUK when I was diagnosed as a primary patient in 2018… — 10 October 2024
I think I’m officially a long-term metastatic breast cancer survivor… — 9 October 2024
Primary breast cancer tends to fill Breast Cancer Awareness Month… — 7 October 2024
I was just 39 years old, a mother of three young girls… — 6 October 2024
Soon after my diagnosis with metastatic breast cancer age 33, someone tried to explain… — 3 October 2024
The infographic on the red flag signs for metastatic breast cancer is a brilliant resource… — 2 October 2024
METUPUK Breast Cancer Awareness 2024 for metastatic breast cancer — 1 October 2024
The backache began in January 2023… — 1 October 2024
I was diagnosed with ER/PR+ HER- primary breast cancer in February 2022…. — 1 September 2024
Breast cancer patients denied life-extending drug by NICE — 29 July 2024
Why I’m running the Great North Run for METUPUK – Sarah Lane — 19 July 2024
Emma Lawrence (née Fisher) — 15 July 2024
METUPUK joins the Northern Ireland Cancer Charities Coalition — 18 June 2024
METUPUK update — 11 June 2024
The Economist – Pioneering person-centred breast cancer care – Madeleine Meynell — 5 June 2024
Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell — 30 May 2024
Metastatic May – a Primary Patient by Jane Cooke — 28 May 2024
When D-Day’s DE NOVO – Sue Thomas — 26 May 2024
Guilt – Helen Stewart — 25 May 2024
What Not to Say – Mean Well (Stupid Things People Say) – Rebecca Brown — 23 May 2024
Anticipatory Grief – Relationships and metastatic breast cancer – Jo Taylor — 22 May 2024
Lymphoedema and me… Kirstin Spencer — 20 May 2024
A walking corpse – Beth Fortey — 19 May 2024
Could the next big drug for metastatic breast cancer patients be physical activity? — 18 May 2024
#FightingMBCplatitudes – Uncovering insensitive platitudes: a survey of people with metastatic breast cancer (MBC) — 16 May 2024
Your Cancer Crew – getting with those that get it – Sue Thomas — 15 May 2024
A Sister’s Perspective – Emma Smith (Trustee) — 12 May 2024
My Journey to Alpelisib – Asha Umrawsingh — 9 May 2024
Drugs drugs everywhere, can you access ones that work? Kirstin Spencer — 7 May 2024
How much is a year of life worth? Madeleine Meynell — 30 April 2024
My cost of living crisis – Helen Crawford — 30 April 2024
Tassia Haines — 18 March 2024
Asha Umrawsingh — 10 March 2024
METUPUK at the UK Interdisciplinary Breast Cancer Symposium — 29 February 2024
PARP inhibitor Talazoparib recommended by NICE for the treatment of hereditary BRCA mutated metastatic breast cancer — 21 January 2024
NICE Methodology Roundtable Discussion — 16 December 2023
Mindfulness and Metastatic Breast Cancer at Christmas — 16 December 2023
Dear Beth… — 1 November 2023
NICE invites comments from the public on the draft guidance to not recommend the parp inhibitor talazoparib — 27 September 2023
Emma Saville — 26 September 2023
“Fighting” Metastatic Breast Cancer Platitudes — 26 September 2023
Kit Dzeryn — 29 May 2023
Bren Craggs – IN NAM Graduate Desert Challenge 2023 — 27 May 2023
GIVEACAR and why they support METUPUK — 25 May 2023
“I’m definitely living. I’m not dying yet.” — 24 May 2023
Feeling guilty FOR working. Feeling guilty for NOT working. — 19 May 2023
LMD (Leptomeningeal Disease) and whole brain radiotherapy – Carole’s story — 15 May 2023
On the trail of a clinical trial (Kit’s story) — 14 May 2023
Abemaciclib – new treatment — 13 May 2023
China Doll — 12 May 2023
The Irony of Metastatic Breast Cancer – Mary Huckle — 11 May 2023
Being invisible on a cancer ward… — 10 May 2023
Breathing Techniques with Louisa from Breathe Balance Be — 9 May 2023
Mental Health and Metastatic Breast Cancer — 8 May 2023
Drug access – drug hope vs financial approval… — 7 May 2023
Dr Rachel Eyre interviews Dr Hannah Harrison about breast cancer research — 6 May 2023
How smarter therapies can help metastatic breast cancer patients – and why we need more! — 5 May 2023
My Journey to Alpelisib — 4 May 2023
On the trail of a Clinical Trial… — 3 May 2023
METUPUK are delighted by the Scottish Medicines Consortium (SMC) acceptance of Enhertu (trastuzumab deruxtecan) for routine use on the NHS. — 10 April 2023
METUPUK’s award winning campaign The Darker Side of Pink, highlighting the 31 women a day who die of Breast Cancer, is coming to the Houses of Parliament, London. — 24 March 2023
Our friend Connie Johncock — 10 March 2023
Meet Gita, a Therapeutic Radiographer — 20 January 2023
Piqray (Alpelisib) denied by Scottish Medicines Consortium — 18 January 2023
Philippa Hetherington Remembered — 11 January 2023
METUPUK are delighted for the approval of Trastuzumab deruxtecan (Enhertu) for second line use. — 20 December 2022
Samantha Womack is “cancer free” after 5 months of treatment? — 8 December 2022
Hearts and Hope 4 Helen donate to METUPUK — 3 December 2022
Pembrolizumab approved by the SMC – Scottish Medicines Consortium — 10 October 2022
Targeted treatment Piqray with Fulvestrant is approved — 14 July 2022
Trodelvy Now! Latest Update — 14 July 2022
Honouring Emma Hillier — 7 June 2022
Don’t Leave Metastatic Breast Cancer Patients in Wales Behind — 2 June 2022
Join us as Laura, Mary Helen & Emily discuss primary & secondary breast cancer. — 30 May 2022
Sex and Intimacy after a Breast Cancer Diagnosis — 26 May 2022
Laura and Nina talk about their MBC diagnosis — 24 May 2022
Palliative Care – Why it’s important to have an Advanced Care Plan — 23 May 2022
Emma Gilchrist tells us why she is fundraising for METUPUK — 20 May 2022
THE DARKER SIDE OF PINK: UK-WIDE CAMPAIGN REVEALS THE REALITY OF LIVING WITH SECONDARY BREAST CANCER — 12 May 2022
Improving access to new breast cancer drugs — 11 May 2022
Nick’s fundraising 310 mile bike ride — 6 May 2022
Why we need MBC research more than ever — 5 May 2022
What does METUPUK do? — 4 May 2022
Trodelvy Now! Rejected by NICE on cost grounds — 7 April 2022
Trodelvy is approved by the Scottish Medicines Consortium (SMC) for Metastatic Triple Negative Breast Cancer for use by NHS Scotland — 7 March 2022
Tucatinib is approved by NICE for HER2+ metastatic breast cancer — 23 February 2022
Why did Jo Taylor our Founder create the infographics? — 4 February 2022
METUPUK are delighted by the Scottish Medicines Consortium (SMC) approval of two new drugs for metastatic breast cancer for use by NHS Scotland — 17 January 2022
About brain metastases — 31 December 2021
Remembering Leila Asoko — 30 December 2021
‘A New Beginning’ Charity Single from Here to There — 21 December 2021
METUPUK Announces Charity Status — 15 November 2021
Every Day Is Secondary Breast Cancer Day For Us — 2 November 2021
Why I support MetUpUK – thoughts from one of our Primary advocates Juliet — 8 October 2021
“Never mind cancer outcomes” — 5 October 2021
Glittering A Turd – A Review — 15 September 2021
A #TrodelvyNow Update — 18 July 2021
#TrodelvyNow! — 30 June 2021
Emma R is Busy Living with Mets — 7 June 2021
Statistics for Metastatic Breast Cancer — 3 June 2021
Thank you for your support in Metastatic May — 1 June 2021
What’s in a name? Palliative Care? Supportive Care? — 25 May 2021
Cancer Poverty: The financial burden of metastatic breast cancer… Emma’s Story — 20 May 2021
The 6 types of people you meet when you’ve got breast cancer. — 19 May 2021
A thousand beautiful moments worth living for — 18 May 2021
Drugs, Drugs, Drugs — 17 May 2021
The serial killer inside me — 15 May 2021
Write to your MP about Herceptin Access — 8 May 2021
Friends and family friday – Connie and her friends — 7 May 2021
A Real Life Accounts of Accessing Clinical Trials — 6 May 2021
Fighting for Palbociclib — 5 May 2021
The Cancer Postcode Lottery — 5 May 2021
Aren’t you a bit young to have a pacemaker — 16 April 2021
MetUp UK Member tassia takes on the Welsh Government — 14 April 2021
Member Profile – Lisa Ford — 2 April 2021
Going Backwards. Cutting Corners for Breast Cancer Diagnosis — 26 March 2021
Why do we use a ‘fingers crossed’ approach to treating advanced cancer? — 19 March 2021
Get Over Yourself — 12 March 2021
Member Profile – Miranda Ashitey — 5 March 2021
The reality of saying goodbye to friends. Regularly. — 26 February 2021
World Cancer Day – COVID and Cancer — 4 February 2021
Are the lives of cancer patients less important than those of COVID patients asks @madmeynell? Dealing with suggested treatment delay — 1 February 2021
METUP-UK Member @drbexl talks about being a ‘good enough cancer patient’ on @iamwillonline podcast — 26 January 2021
METUPUK Founder @ABCDiagnosis features in @thisismedtech — 19 January 2021
Remembering Jo Myatt (@JoanneMyatt25), friend, advocate and supporter of METUPUK #IAmThe31 — 31 December 2020
Video: The Metastatic Cancer ‘Journey’ for #IAmThe31, who are #BusyLivingWithMets — 16 December 2020
We’ve had the #12DaysOfTreatment for those of us #BusyLivingWithMets — 13 December 2020
Chatting to @ForeverCopilots – Travelling and Truly #BusyLivingWithMets — 9 December 2020
The A to Z of breast cancer clinical trials with @OWise_uk — 8 December 2020
‘The lingering mysteries of metastatic recurrence in breast cancer’ in @BrJCancer — 7 December 2020
METUPUK member @drbexl talks hope and grief with @HopefulActivism podcast — 5 December 2020
Why is Awareness of SBC important? By Fiona Macrae of @InsuranceWith — 4 December 2020
It’s December! The 12 Days of Christmas Cartoons by @TassiaHaines #BusyLivingWithMets — 1 December 2020
10 Questions we asked @ProfNDerakshan, from @BC_Resilience, about her work building resilience within the #BreastCancer community — 29 November 2020
10 Questions we asked Gemma Ellis from @stage4deservesmore, helping those #BusyLivingWithMets — 20 November 2020
A Sad Day: Today marks 10,000 UK dead (in 2020) of #MetastaticBreastCancer (#IAmThe31) — 18 November 2020
#TenThousandGifts from @JenniferSkin, #IAmThe31 in memory of @Elaine_Figgins — 16 November 2020
The #IAmThe31 Campaign by @METUPUKorg, mentioned by @SarahJPHughes in @Guardian — 15 November 2020
Founder @abcdiagnosis asks “Can breast cancer be Prevented?” #BreastCancer #Prevention #Risk — 13 November 2020
The @APPGBC Met Today – @METUPUKorg got a mention in an otherwise slow #BreastCancerDebate — 12 November 2020
METUPUK advocate @little_emmabird speaks with @ICR_London re drug pricing — 12 November 2020
Featured in @TechForGoodLive Newsletter — 9 November 2020
Article by @Mary_Huckle in @FutureDreamsS — 5 November 2020
The tyranny of ‘pink positivity’; @METUPUKorg #IAmThe31 campaign features in @MailOnline (@ABCDiagnosis, @drbexl, @TassiaHaines, @ohgoshem) — 2 November 2020
It’s the end of #BreastCancerAwarenessMonth #IAmThe31 — 31 October 2020
Conference Report: ECPC Virtual Metastatic Breast Cancer Roundtable — 30 October 2020
10 ways you can you help @METUPUKorg and other #SecondaryBreastCancer charities, written by @Diamondtrees11 — 28 October 2020
Upcoming Online Event: ECPC Virtual Metastatic Breast Cancer Roundtable — 27 October 2020
In #BreastCancerAwarenessMonth (#BCAM), help @METUPUKORG by writing to your MP — 26 October 2020
Statistics, Damn Lies and Statistics? Are you going to #WearItPink? — 23 October 2020
#IAmThe31: 31 Days? 31 Activities? 3.1 Distances? 31 People :-( — 22 October 2020
Campaign #IAmThe31 and @abcdiagnosis feature in @JenniferSkin blog — 20 October 2020
Response to @MattHancock re ‘fast-tracking transformative treatments’ — 19 October 2020
The ‘pink positivity’ is exhausting – when it ignores #IAmThe31 and focuses on #NoBraDay — 18 October 2020
TotalHealth.Co.Uk: What every woman who’s had breast cancer should know — 17 October 2020
‘Europe’s Beating Cancer Plan: Bridging the Gap in Breast Cancer Care’: @ABCGlobalAll Conference — 16 October 2020
Member @Diamondtrees11 asks: do we need a trigger warning for #IAmThe31 on #MBCDay? — 13 October 2020
Press Release: METUPUK launches #IAmThe31 Campaign to Highlight Secondary Breast Cancer Day #BCAM — 13 October 2020
What’s in a name? Metastatic? Secondary? Advanced? Cancer #IAmThe31 — 12 October 2020
‘Breast Cancer in Young Women’ Conference #BCYonline — 11 October 2020
Member @TassiaHaines talks ‘Pink Positivity’ in #BreastCancerAwarenessMonth on #WorldMentalHealthDay — 10 October 2020
Member @Diamondtrees11 new blog: ‘Would someone please shoot the grim reaper?’ #BCAM — 9 October 2020
Member @Mary_Huckle features in @MailOnline for #BCAM — 8 October 2020
Members @Mary_Huckle and @BeingJenCronje on @Lorraine for #BreastCancerAwarenessMonth — 7 October 2020
‘What If?’ asks @mary_huckle in #BreastCancerAwarenessMonth — 5 October 2020
Today Is: Inflammatory Breast Cancer Awareness Day — 4 October 2020
How to … add a METUP Facebook Profile Picture Frame #IAmThe31, #BusyLivingWithMets — 3 October 2020
#IAmThe31 Campaign — 2 October 2020
The importance of mammograms? #BreastCancerAwarenessMonth #IAmThe31 — 2 October 2020
‘We Demand Change’ for #BreastCancerAwarenessMonth — 1 October 2020
Postcode Lotteries — 24 September 2020
Member @drbexl talks cancer and COVID-19 with the BBC — 7 September 2020
Moo to you too! — 5 September 2020
TotalHealth.co.uk: What the media has got so wrong about Sarah Harding — 28 August 2020
Thank you to all for Beth’s donations — 11 August 2020
What’s so bad about fears and tears? — 7 August 2020
Supportive Care — 3 August 2020
Herceptin report re access to 3rd and subsequent line of therapy problem with drug access — 12 July 2020
Email complaint to CRUK May 2020 — 11 July 2020
They lie and cancer patients die… — 10 July 2020
Founder @abcdiagnosis calls for end to ‘end of treatment bells’ in @Telegraph — 7 July 2020
What is it like having terminal cancer? — 23 June 2020
Member @Diamondtrees11 appears with @Oebs1 on @BBCNews discussing the impact of COVID on Cancer Treatment — 14 May 2020
Response by Breast Cancer Now to our April open email — 19 April 2020
Open email to Breast Cancer Now re COVID19 (& letter for your MP) — 15 April 2020
We need you… — 9 April 2020
Member @drbexl talks cancer and COVID with @PremierRadio, whilst ‘stranded’ in New Zealand — 26 March 2020
‘I am more than my cancer’ says @Diamondtrees11 — 18 March 2020
ABC5 Lisbon – The Global Alliance — 12 March 2020
Members of MetUpUK descend on parliament — 9 March 2020
A good thing? F*** off! — 1 March 2020
It’s not just hair! — 23 February 2020
What is patient advocacy? — 13 February 2020
SIS Breast Cancer Healthcare Conference September 2020 — 12 February 2020
Alternative therapies – do they make a difference? — 11 February 2020
Life on a Phase 1 clinical trial — 11 February 2020
UKIBCS Jan 2020 — 1 February 2020
Conferences – UKBI May and November 2020 — 1 February 2020
The researchers who make a difference to MBC patients — 23 January 2020
TotalHealth.Co.Uk: When breast cancer is incurable by @madmeynell — 22 January 2020
National Cancer Research Institute Conference #NCRI2019 — 6 November 2019
Founder @abcdiagnosis appears on @thismorning discussing #EndOfTreatmentBells — 29 October 2019
Secondary Breast Cancer Awareness Conference 2019 – Swansea — 23 October 2019
Taking control after a secondary breast cancer diagnosis – what I wish I knew when I was first diagnosed — 12 October 2019
Member Beth Roberts explains METUPUK aims and infographics — 19 July 2018

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News & blog (228 articles)