METUPUK update
METUPUK members have done amazing things in the last two years and continue to do so. Here is an update on the last two months: Founder Jo Taylor was due to have been in Berlin to present a poster…
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News & blog
All our latest news, campaign updates and blog posts from the METUPUK team and the wider MBC community.
Articles
The Economist – Pioneering person-centred breast cancer care – Madeleine Meynell
At the End of May 2024 Madeleine attended an event at the offices of the Economist on Pioneering person-centred breast cancer care. This event was part of a wider project looking at care in Europe…
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Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell
Just shy of six years ago I was diagnosed with Inflammatory Breast Cancer (IBC). Rare with a “high fatality rate and difficult to treat” is what I learnt in the first few weeks. Make your peace that…
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Metastatic May – a Primary Patient by Jane Cooke
I was diagnosed with hormone positive primary breast cancer in February 2022. I had a lumpectomy, chemotherapy, radiotherapy and am now on 10 years of reduce risking hormone repressing therapy. A…
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When D-Day’s DE NOVO – Sue Thomas
When D-Day’s DE NOVO My name is Sue, I’m a wife, a mum, a nanny, a daughter, a friend, a Metastatic Breast Cancer patient, and an advocate. My breast cancer diagnosis, back in April 2021 at the age…
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Guilt – Helen Stewart
As mothers, we have a strong biological urge to protect our offspring. To protect them and keep them safe from harm. That urge starts at their birth and continues as they grow from vulnerable…
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Anticipatory Grief – Relationships and metastatic breast cancer – Jo Taylor
I first came across “anticipatory grief” whilst friends with Sarah Illingsworth, who had metastatic breast cancer and was a Trustee for Breast Cancer Now. She was bold and forthright and did not shy…
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Lymphoedema and me… Kirstin Spencer
My lymphoedema started very abruptly. One night, I developed unbelievably bad pain in my arm and shoulder. It was awful. I showered, tried to rub it better. When I went to bed, I stretched both arms…
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A walking corpse – Beth Fortey
Others reaction to my cancer. It’s the reaction of others that really gets me. It’s like you have an infectious disease sometimes; people avoid you in the shops, they don’t call as often as they once…
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Could the next big drug for metastatic breast cancer patients be physical activity?
I have always participated in some kind of form of physical activity. I was a gymnast when I was young, loved the fact I could walk on my hands, do the splits, back flips etc. When I was at school, I…
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#FightingMBCplatitudes – Uncovering insensitive platitudes: a survey of people with metastatic breast cancer (MBC)
Last Autumn, Jo Taylor founder of After Breast Cancer Diagnosis and METUPUK and Eva Schumacher from Mamma Mia, an online German cancer magazine, (Eva is a patient living with MBC), were asked to be…
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