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Articles filed under Education.

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Pages from a drug company evidence submission to NICE, with most of the overall survival results blacked out.

Education Treatment Options

Improving access to new breast cancer drugs

When I first started volunteering with METUPUK, I wasn’t really sure what I would do. For a few months, I sat on the sides to get a feel for the organisation. I shared METUPUK links on social media,…

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Brain mets

Diagnosis Education

About brain metastases

To follow on from yesterday’s post about the death of Leila, I would like to highlight some information about brain metastases and just a quick look on google provided this information.

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Education Living with MBC

“Never mind cancer outcomes”

It was shocking to hear the Prime Minister dismiss the importance of cancer outcomes in such an offhand way in a TV interview this week. But at the same time, it was sadly not surprising to many of…

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Five friends together on a night out, arms round each other.

Education Living with MBC

Friends and family friday – Connie and her friends

MetUpUK member Connie sat down, on zoom, with some of her oldest friends to talk to them about their understanding of her life with MBC. They discuss cancer types, treatment lines, tumor profiling,…

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Clinical trials

Education Quality of Life

A Real Life Accounts of Accessing Clinical Trials

In 2018 I was diagnosed with secondary breast cancer in my liver, I was 44. I knew the survival statistics were grim, so decided from the outset, in order to outlive the 2 to 3-year median I’d have…

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Fighting for Ibrance

Education Member Stories

Fighting for Palbociclib

Under NICE rules, I would not be eligible to receive the medication that I am currently taking for my metastatic breast cancer on the NHS. I have been on my current drug regime since 2017, I am…

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The cancer postcode lottery

Education Patient Advocacy

The Cancer Postcode Lottery

I have been living with secondary breast cancer for 7 years, and am very aware that I’m one of the very lucky ones as the median life expectancy is 2-3 years. The general public perception of breast…

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A woman in a cream woolly hat and winter coat, smiling, in a park.

Education Member Stories

Aren’t you a bit young to have a pacemaker

Stage 4 breast cancer with a pacemaker Most people know someone with a pacemaker, and chances are that person will be elderly. The average age of a first pacemaker implantation in the UK is 72, but…

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Tassia Haines

Education Patient Advocacy

MetUp UK Member tassia takes on the Welsh Government

On March 22nd In Wales, the 20 page cancer delivery plan (CDP) had been replaced by a vague 3 quality statement. (QS) The WHO recommends every nation should have a CDP and just like that Wales became…

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