Dear Beth…
Hi Beth, it’s Kat here, We never met but your name is talked about so often. Whether it be an amazing thing you did, a funny story, your intellect on dealing with MBC and knowledge on clinical trials…
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News & blog
All our latest news, campaign updates and blog posts from the METUPUK team and the wider MBC community.
Articles
NICE invites comments from the public on the draft guidance to not recommend the parp inhibitor talazoparib
METUPUK are disappointed by the National Institute of Clinical Excellence (NICE) decision to not recommend talazoparib (Talzenna ®, Pfizer Ltd.) for treating HER2-negative, locally advanced or…
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Emma Saville
We met Emma as she applied to be one of the METUPUK Darker Side of Pink ladies with our campaign that started in 2021 which focused on metastatic breast cancer, the disease that Emma had. From our…
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“Fighting” Metastatic Breast Cancer Platitudes
Seagen Biotech company asked two metastatic breast cancer (MBC) advocates Eva Schumacher from Mamma Mia online German cancer magazine and patient living with MBC and myself Jo Taylor founder of After…
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Kit Dzeryn
Sadly our Kit @Diamondtrees11 died on Monday 7th May. Her husband Phillip contacted us with the tragic news. We didn’t meet Kit but she was an integral part of METUPUK supporting us with writing…
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Bren Craggs – IN NAM Graduate Desert Challenge 2023
Back in the summer of 2022, our daughter’s partner, Bren, talked to me about the IN NAM Graduate Desert challenge that he had signed up to. When he explained what the challenge involved and the…
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GIVEACAR and why they support METUPUK
In September last year, one of our Trustees Louise Furneaux died from metastatic breast cancer. She was a valued member of METUPUK and was our most recently appointed trustee. She helped organise…
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“I’m definitely living. I’m not dying yet.”
Sandy Sexton, patient advocate for METUPUK, is campaigning in Scotland on behalf of secondary/metastatic Breast Cancer patients. In October last year, after 18 months of debilitating back pain, Sandy…
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Feeling guilty FOR working. Feeling guilty for NOT working.
As a partner of someone with metastatic cancer, it can be very difficult to know what the right amount of paid work is to do. Sometimes it feels like I could work a full-time job but other times like…
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LMD (Leptomeningeal Disease) and whole brain radiotherapy – Carole’s story
Do you remember what you were wearing on 1 December 2019? Probably not. I do though. I was wearing a blue Valencia Marathon t-shirt, an exhausted but elated perma-grin and a shiny medal round my…
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On the trail of a clinical trial (Kit’s story)
Clinical trials are essential for testing new treatments for metastatic breast cancer. For patients, they represent hope – the chance to get access to a new potential treatment before it is licenced.…
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Abemaciclib – new treatment
Starting a new medication can be a daunting experience, especially if the medication is still fairly new to the market. Abemaciclib may not be a household name, but for those who are living with…
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