China Doll
Birthday and cancerversaries became bittersweet as I was dealing with the realities of cancer, the side effects, the constant fear of the unknown, the helplessness, the indignity of losing who you…
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News & blog
All our latest news, campaign updates and blog posts from the METUPUK team and the wider MBC community.
Articles
The Irony of Metastatic Breast Cancer – Mary Huckle
Many of our followers on social media will remember Mary Huckle and her tireless campaigning for #metastaticbreastcancer awareness. This blog post is the last content she wrote for us, a year ago for…
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Being invisible on a cancer ward…
Tassia Haines – METUPUK (Wales) member, patient advocate & fantastic artist. Back in February, I had to go into hospital after side effects from being on Trodelvy. I wanted to capture the feeling of…
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Breathing Techniques with Louisa from Breathe Balance Be
“As long as you are breathing, there is more right with you than there is wrong…..”
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Mental Health and Metastatic Breast Cancer
The human brain is hardwired to seek out danger. It’s part of being human, an inbuilt survival mechanism designed to protect us. Normal functioning of the mind enables us to project our thoughts to…
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Drug access – drug hope vs financial approval…
I contacted METUPUK when I was diagnosed as a primary patient in 2018. Even though my mum died of secondary breast cancer in 2015 I had no real understanding of the metastatic disease and the…
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Dr Rachel Eyre interviews Dr Hannah Harrison about breast cancer research
Scientific research is vital for the development of new and improved treatments for secondary breast cancer. But what’s it like to be a scientist working in this area? Dr Hannah Harrison received her…
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How smarter therapies can help metastatic breast cancer patients – and why we need more!
At METUPUK, we campaign for new and better therapies for patients with secondary breast cancer. One of our recent campaigns, #TrodelvyNow helped to make a new type of drug, Trodelvy (sacituzumab…
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My Journey to Alpelisib
Oh how I wished it was a walking journey! That I could deal with! But in the last 6 months my oncologist’s quest to get me to have this PIKC3A targeted drug, was admirable, and left us on a roller…
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On the trail of a Clinical Trial…
METUPUK historically maintained their own in-house clinical trial database for metastatic trials in the UK as there was no one source that contained them all. It used the key sites used across the…
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METUPUK are delighted by the Scottish Medicines Consortium (SMC) acceptance of Enhertu (trastuzumab deruxtecan) for routine use on the NHS.
METUPUK are delighted by the Scottish Medicines Consortium (SMC) acceptance of Enhertu (trastuzumab deruxtecan) for routine use on the NHS. The Scottish Medicines Consortium (SMC) has accepted:…
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METUPUK’s award winning campaign The Darker Side of Pink, highlighting the 31 women a day who die of Breast Cancer, is coming to the Houses of Parliament, London.
‘The Darker Side of Pink’ was launched in Breast Cancer Awareness Month 2021 by METUPUK – the UK’s only patient advocacy group dedicated to Metastatic (Secondary) Breast Cancer (MBC) – to expose the…
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