Articles filed under Patient Advocacy.
Having just completed screening for a clinical trial I must initiate this discussion. Trials offer treatments not otherwise available – so with limited treatments available, it’s without question…
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Accessing clinical trials is a minefield: firstly, you need to find a trial that you are eligible for, which can include factors such as your cancer sub-type, the receptors you carry or don’t carry,…
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In our recent Metastatic May campaign, the theme was ‘The Cost of Living’. Living with metastatic breast cancer affects personal finances, careers, and overall income. But we also explored the…
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According to Cancer Research UK, approximately one in five of all new female breast cancer cases are under the age 50 and around half are between 35 – 64…
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A friend a few weeks ago recently joined the statistic of 31 women that die every day of metastatic breast cancer, and we just hear the same words and comments. “She was brave and inspirational; she…
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Asha died in March 2024. She wrote this blog, explaining the problems that she experienced trying to access a drug that she was ineligible for, because she fell outside of the treatment lines…
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I contacted METUPUK when I was diagnosed as a primary patient in 2018. Even though my mum died of Metastatic Breast Cancer (MBC) in 2015, I had no real understanding of the “metastatic disease” and…
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What price survival? I think I’m officially a long-term metastatic breast cancer survivor. I mean I have just passed five years since diagnosis and when I looked up the average it was 3-5 years, so I…
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Red Flags and DENOVO Breast Cancer Primary breast cancer tends to fill Breast Cancer Awareness Month. It’s a month where our social media, TV, radio, advertising and retail all turn pink and fluffy…
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I was just 39 years old, a mother of three young girls, facing a life expectancy of two to three years post metastatic (secondary) breast cancer diagnosis. My chance to see my girls grow up and live…
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Sadly our Kit @Diamondtrees11 died on Monday 7th May 2023 We will miss her voice as she wasn’t scared of speaking out about issues. This blog post by Kit from 2020 still reads as strong today as it…
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Jo Taylor’s infographic on the red flag signs for metastatic breast cancer is a brilliant resource and one that should be shared far and wide, but this is my story about being so lucky to have been…
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