The backache began in January 2023…
The backache began in January 2023: I went to my GP and red flagged that I had had breast cancer (due to METUPUK infographics I knew of the warning signs), but I wasn’t referred for a scan. It was…
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Patient Advocacy news
Articles filed under Patient Advocacy.
Articles
I was diagnosed with ER/PR+ HER- primary breast cancer in February 2022….
I was diagnosed with ER/PR+ HER- primary breast cancer in February 2022. I was treated with a lumpectomy followed by 12 sessions of chemotherapy and 24 sessions of radiotherapy; I am now on a 10-year…
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Breast cancer patients denied life-extending drug by NICE
A cancer drug which received standing ovation from the Global Medical Community is being withheld from NHS breast cancer patients. METUPUK are devastated by NICE decision not to recommend the drug…
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Why I’m running the Great North Run for METUPUK – Sarah Lane
My Mum died in June 2018 after being diagnosed with Breast Cancer in 2016. Her death certificate stated that she had secondary breast cancer in her liver. This was all I knew about primary and…
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Emma Lawrence (née Fisher)
Emma Lawrence (née Fisher) 21.01.81 – 13.07.24 Everyone at METUPUK is incredibly saddened to hear that Emma Lawrence (née Fisher) has died at the age of 43. Emma was diagnosed with early stage breast…
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METUPUK joins the Northern Ireland Cancer Charities Coalition
METUPUK has joined the Northern Ireland Coalition (NICCC) and will work collaboratively with partner charities to improve outcomes for cancer patients in Northern Ireland. Ann McBrien, METUPUK’s…
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METUPUK update
METUPUK members have done amazing things in the last two years and continue to do so. Here is an update on the last two months: Founder Jo Taylor was due to have been in Berlin to present a poster…
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The Economist – Pioneering person-centred breast cancer care – Madeleine Meynell
At the End of May 2024 Madeleine attended an event at the offices of the Economist on Pioneering person-centred breast cancer care. This event was part of a wider project looking at care in Europe…
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Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell
Just shy of six years ago I was diagnosed with Inflammatory Breast Cancer (IBC). Rare with a “high fatality rate and difficult to treat” is what I learnt in the first few weeks. Make your peace that…
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Metastatic May – a Primary Patient by Jane Cooke
I was diagnosed with hormone positive primary breast cancer in February 2022. I had a lumpectomy, chemotherapy, radiotherapy and am now on 10 years of reduce risking hormone repressing therapy. A…
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When D-Day’s DE NOVO – Sue Thomas
When D-Day’s DE NOVO My name is Sue, I’m a wife, a mum, a nanny, a daughter, a friend, a Metastatic Breast Cancer patient, and an advocate. My breast cancer diagnosis, back in April 2021 at the age…
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Guilt – Helen Stewart
As mothers, we have a strong biological urge to protect our offspring. To protect them and keep them safe from harm. That urge starts at their birth and continues as they grow from vulnerable…
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