Patient Advocacy news
Articles filed under Patient Advocacy.
Articles
Anticipatory Grief – Relationships and metastatic breast cancer – Jo Taylor
I first came across “anticipatory grief” whilst friends with Sarah Illingsworth, who had metastatic breast cancer and was a Trustee for Breast Cancer Now. She was bold and forthright and did not shy…
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Lymphoedema and me… Kirstin Spencer
My lymphoedema started very abruptly. One night, I developed unbelievably bad pain in my arm and shoulder. It was awful. I showered, tried to rub it better. When I went to bed, I stretched both arms…
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Could the next big drug for metastatic breast cancer patients be physical activity?
I have always participated in some kind of form of physical activity. I was a gymnast when I was young, loved the fact I could walk on my hands, do the splits, back flips etc. When I was at school, I…
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Your Cancer Crew – getting with those that get it – Sue Thomas
In April 2021, when I was told that I had de novo (straight to Stage 4) metastatic breast cancer, this rocked our world as a family and changed our lives forever. We were in shock, we were in…
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A Sister’s Perspective – Emma Smith (Trustee)
We had all plunged into a big black hole of despair in the days which followed my sister Helen’s metastatic breast cancer (MBC) diagnosis. Two and a half years on and now on her second line of…
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My Journey to Alpelisib – Asha Umrawsingh
Asha died in March this year. She wrote this blog explaining the problems that she experienced trying to access a drug that she was ineligible for because she fell outside of the treatment lines…
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Drugs drugs everywhere, can you access ones that work? Kirstin Spencer
Here at METUPUK, we know drug access is a big issue for all metastatic breast cancer patients. There have been huge leaps and bounds made in terms of research, knowledge and potential treatment…
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Tassia Haines
We are heartbroken to share the news that Tassia Haines has died. A member of METUPUK and our Executive Lead for Wales, Tass had been a significant campaigner for MBC patients since her own diagnosis…
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PARP inhibitor Talazoparib recommended by NICE for the treatment of hereditary BRCA mutated metastatic breast cancer
METUPUK are delighted by the National Institute of Clinical Excellence (NICE) decision to recommend Talazoparib (Talzenna ®, Pfizer Ltd.) for treating HER2-negative, locally advanced or metastatic…
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NICE Methodology Roundtable Discussion
In November 2023 METUPUK trustee Madeleine Meynell was a panel member at the event Optimising NICE outcomes: Policy roundtable on the evolution of NICE methodology and how patient organisations can…
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Mindfulness and Metastatic Breast Cancer at Christmas
Living with an incurable form of cancer presents lots of physical, emotional and mental challenges not least of which are the expectations and pressures associated with annual celebrations and…
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